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Intervening from the “Inside Out”: Exploring the Role of Self-Determination and Mindfulness-Based Interventions for People with Intellectual and Developmental Disabilities - Advances in Neurodevelopmental Disorders

  • ️Singh, Nirbhay N.
  • ️Wed Apr 20 2022

References

  • Amaro, A. & Singh, N. N. (2021). Mindfulness: Definitions, attributes, and mechanisms. In N. N. Singh & S. D. Singh Joy (Eds.) Mindfulness-based interventions with children and adolescents: Research and practice (pp. 11–33). London, UK: Routledge

  • Anderson, R., McKenzie, K., & Noone, S. (2019). Effects of a mindfulness-based stress reduction course on the psychological well-being of individuals with an intellectual disability. Learning Disability Practice, 22(2), 20–25. https://doi.org/10.7748/ldp.2019.e1981

    Article  Google Scholar 

  • Andrews, E. E., Forber-Pratt, A. J., Mona, L. R., Lund, E. M., Pilarski, C. R., & Balter, R. (2019). #SaytheWord: A disability culture commentary on the erasure of “disability.” Rehabilitation Psychology, 64(2), 111–118. https://doi.org/10.1037/rep0000258

    Article  PubMed  Google Scholar 

  • Andrews, E. E. & Forber-Pratt, A. J. (2022). Disability culture, identity, and language. In M. L. Wehmeyer & D. S. Dunn (Eds.), The positive psychology of personal factors: Implications for understanding disability. Lexington Books

  • Beck, K. B., Greco, C. M., Terhorst, L. A., Skidmore, E. R., Kulzer, J. L., & McCue, M. P. (2020). Mindfulness-based stress reduction for adults with autism spectrum disorder: Feasibility and estimated effects. Mindfulness, 11, 1286–1297.

    Article  Google Scholar 

  • Bögels, S., Hoogstad, B., van Dun, L., de Schutter, S., & Restifo, K. (2008). Mindfulness training for adolescents with externalizing disorders and their parents. Behavioural and Cognitive Psychotherapy, 36, 193–209.

    Article  Google Scholar 

  • Bögels, S. M., Hellemans, J., van Deursen, S., Römer, M., & van der Meulen, R. (2014). Mindful parenting in mental health care: Effects on parental and child psychopathology, parental stress, parenting, coparenting, and marital functioning. Mindfulness, 5, 536–551.

    Article  Google Scholar 

  • Bögels, S. M., Oort, F. J., Potharst, E., van Roosmalen, R., Williams, J. M. G., & de Bruin, E. (2021). Family mindfulness training for childhood ADHD: Short- and long-term effects on children, fathers and mothers. Mindfulness, 12, 3011–3025.

    Article  Google Scholar 

  • Bottema-Beutel, K., Kapp, S. K., Lester, J. N., Sasson, N. J., & Hand, B. N. (2021). Avoiding ableist language: Suggestions for autism researchers. Autism in Adulthood, 3(1), 18–29. https://doi.org/10.1089/aut.2020.0014

    Article  Google Scholar 

  • Bowen, S., Chawla, N., & Marlatt, G. A. (2011). Mindfulness-based relapse prevention for additive behaviors: A clinician’s guide. New York, NY: Guilford.

    Google Scholar 

  • Burgdorf, V., Szabó, M., & Abbott, M. J. (2019). The effect of mindfulness interventions for parents on parenting stress and youth psychological outcomes: A systematic review and meta-analysis. Frontiers in Psychology, 10, 1336.

    Article  PubMed  PubMed Central  Google Scholar 

  • Burke, K. M., Shogren, K. A., Antosh, A. A., LaPlante, T., & Masterson, L. H. (2019). Implementing the SDLMI with students with significant support needs during transition planning. Career Development and Transition for Exceptional Individuals, 43(2), 115–121. https://doi.org/10.1177/2165143419887858

    Article  Google Scholar 

  • Burke, K. M., Raley, S. K., Shogren, K. A., Hagiwara, M., Mumbardó-Adam, C., Uyanik, H., & Behrens, S. (2020). A meta-analysis of interventions to promote self-determination for students with disabilities. Remedial and Special Education, 41(3), 176–188. https://doi.org/10.1177/0741932518802274

    Article  Google Scholar 

  • Burke, K. M., Shogren, K. A., & Carlson, S. (2021). Examining types of goals set by transition-age students with intellectual disability. Career Development and Transition for Exceptional Individuals, 44(3), 135–147. https://doi.org/10.1177/2165143420959055

    Article  Google Scholar 

  • Burnett-Zeigler, I., & McLeod, D., II. (2022). Diversifying mindfulness: Reflections from our journeys applying mindfulness-based interventions in the black community. Journal of Integrative and Complementary Medicine, 28(2), 110–113.

    Article  PubMed  Google Scholar 

  • Chiesa, A., Serretti, A., & Jakobson, J. C. (2013). Mindfulness: Top-down or bottom-up emotion regulation strategy? Clinical Psychology Review, 33, 82–96.

    Article  PubMed  Google Scholar 

  • Felver, J. C., Clawson, A. J., Ash, T. L., Martens, B. K., Wang, Q., & Singh, N. N. (2022). Meta-analysis of mindfulness-based program Soles of the Feet for disruptive behavior. Advance of Print: Behavior Modification.

    Book  Google Scholar 

  • Felver, J. C., & Singh, N. N. (2020). Mindfulness in the classroom: An evidence-based program to reduce disruptive behavior and increase academic achievement. New Harbinger Publications

  • Fuchs, C., Lee, J. K., Roemer, L., & Orsillo, S. M. (2013). Using mindfulness- and acceptance-based treatments with clients from nondominant cultural and/or marginalized backgrounds: Clinical considerations in using acceptance-and mindfulness- based treatments with diverse populations. Cognitive and Behavioral Practice, 20, 1–12. https://doi.org/10.1016/j.cbpra.2011.12.004

    Article  PubMed  PubMed Central  Google Scholar 

  • Griffith, G. M., Hastings, R. P., Williams, J., Jones, R. S. P., Roberts, J., Crane, R. S., Snowden, H., Bryning, L., Hoare, J., & Edwards, R. T. (2019). Mixed experiences of a mindfulness-informed intervention: Voices from people with intellectual disabilities, their supporters, and therapists. Mindfulness, 10, 1828–1841.

    Article  Google Scholar 

  • Hardeman, W., Sutton, S., Griffin, S., Johnston, M., White, A., Wareham, N., et al. (2005). A causal modelling approach to the development of theory-based behavior change programmes for trial evaluation. Health Education Research, 20, 676–687.

    Article  PubMed  Google Scholar 

  • Haydicky, J., Shecter, C., Wiener, J., & Ducharme, J. M. (2015). Evaluation of MBCT for adolescents with ADHD and their parents: Impact on individual and family functioning. Journal of Child and Family Studies, 24, 76–94.

    Article  Google Scholar 

  • Heifetz, M., & Dyson, A. (2017). Mindfulness-based group for teens with developmental disabilities and their parents: A pilot study. Mindfulness, 8(2), 444–453.

    Article  Google Scholar 

  • Hidalgo, M. A., Layland, E., Kubicek, K., & Kipke, M. (2020). Sexual racism, psychological symptoms, and mindfulness among ethnically/racially diverse young men who have sex with men: A moderation analysis. Mindfulness, 11(2), 452–461. https://doi.org/10.1007/s12671-019-01278-5

    Article  PubMed  Google Scholar 

  • Hölzel, B. K., Lazar, S. W., Gard, T., Schuman-Olivier, Z., Vago, D. R., & Ott, U. (2011). How does mindfulness meditation work? Proposing mechanisms of action from a conceptual and neural perspective. Perspectives on Psychological Science, 6(6), 537–559.

    Article  PubMed  Google Scholar 

  • Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: Past, present, and future. Clinical Psychology: Science and Practice, 10(2), 144–156. https://doi.org/10.1093/clipsy.bpg016

    Article  Google Scholar 

  • Kabat-Zinn, J. (1990). Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness. Delacorte Press

  • Kiep, M., Spek, A. A., & Hoeben, L. (2015). Mindfulness-based therapy in adults with an autism spectrum disorder: Do treatment effects last? Mindfulness, 5, 637–644.

    Article  Google Scholar 

  • Knaster, M. (2010). Living this life fully: Stories and teachings of Munindra. Shambhala

  • Li, M. J., DiStefano, A. S., Thing, J. P., Black, D. S., Simpson, K., Unger, J. B., Milan, J., Contreras, R., & Bluthenthal, R. N. (2019). Seeking refuge in the present moment: A qualitatively refined model of dispositional mindfulness, minority stress, and psychosocial health among Latino/a sexual minorities and their families. Psychology of Sexual Orientation and Gender Diversity, 6(4), 408–419. https://doi.org/10.1037/sgd0000338

    Article  PubMed  PubMed Central  Google Scholar 

  • Lo, H. H. M., Wong, S. W. L., Wong, J. Y. H., Yeung, J. W. K., Snel, E., & Wong, S. Y. S. (2020). The effects of family-based mindfulness intervention on ADHD symptomatology in young children and their parents: A randomized controlled trial. Journal of Attention Disorders, 24(5), 667–680.

    Article  PubMed  Google Scholar 

  • Martinez, J. H., Suyemoto, K. L., Abdullah, T., Burnett-Zeigler, I., & Roemer, L. (2022). Mindfulness and valued living in the face of racism-related stress. Advance of Print: Mindfulness.

    Book  Google Scholar 

  • Meppelink, R., de Bruin, E. I., Wanders-Mulder, F. H., Vennik, C. J., & Bögels, S. M. (2016). Mindful parenting training in child psychiatric settings: Heightened parental mindfulness reduces parents’ and children’s psychopathology. Mindfulness, 7, 680–689.

    Article  PubMed  PubMed Central  Google Scholar 

  • Nagy, G. A., Cuervo, C., Rodriguez, E. Y. R., Vilardaga, J. P., Zerubavel, N., West, J. L., Falick, M. C., & Parra, D. C. (2022). Building a more diverse and inclusive science: Mindfulness-based approaches for Latinx individuals. Advance of Print: Mindfulness.

    Google Scholar 

  • National Technical Assistance Center on Transition. (2017). Evidence-based practices and predictors in secondary transition: What we know and what we still need to know. Charlotte, NC: Author.

    Google Scholar 

  • Potharst, E. S., Baartmans, J. M. D., & Bögels, S. M. (2021). Mindful parenting training in a clinical versus non-clinical setting: An explorative study. Mindfulness, 12, 504–518.

    Article  Google Scholar 

  • Prochaska, J. O., DiClemente, C. C., & Norcross, J. C. (1992). In search of how people change: Applications to the addictive behaviors. American Psychologist, 47, 1102–1114.

    Article  PubMed  Google Scholar 

  • Proulx, J., Croff, R., Oken, B., Aldwin, C. M., Fleming, C., Bergen- Cico, D., ... & Noorani, M. (2018). Considerations for research and development of culturally relevant mindfulness interventions in American minority communities. Mindfulness, 9(2), 361-370

  • Ryan, R. M., & Deci, E. L. (2017). Self-determination theory: Basic psychological needs in motivation, development, and wellness. Guilford Press.

    Book  Google Scholar 

  • Ryan, R. M., Donald, J. N., & Bradshaw, E. L. (2021). Mindfulness and motivation: A process view using self-determination theory. Current Directions in Psychological Science, 30(4), 300–306.

    Article  Google Scholar 

  • Segal, Z. V., Williams, J. M. G., & Teasdale, J. D. (2002). Mindfulness-based cognitive therapy for depression: A new approach to preventing relapse. Guilford

  • Shogren, K. A., & Ward, M. J. (2018). Promoting and enhancing self-determination to improve the post-school outcomes of people with disabilities. Journal of Vocational Rehabilitation, 48, 187–196.

    Article  Google Scholar 

  • Shogren, K. A., Wehmeyer, M. L., Palmer, S. B., Forber-Pratt, A. J., Little, T. J., & Lopez, S. J. (2015). Causal agency theory: Reconceptualizing a functional model of self-determination. Education and Training in Autism and Developmental Disabilities, 50, 251–263.

    Google Scholar 

  • Shogren, K. A., Wehmeyer, M. L., & Lane, K. L. (2016). Embedding interventions to promote self-determination within multi-tiered systems of supports. Exceptionality, 24(4), 213–224. https://doi.org/10.1080/09362835.2015.1064421

    Article  Google Scholar 

  • Shogren, K. A., Wehmeyer, M. L., & Singh, N. N. (Eds.). (2017). Handbook of positive psychology in intellectual and developmental disabilities: Translating research into practice. Springer.

    Google Scholar 

  • Shogren, K. A., Raley, S. K., Burke, K. M., & Wehmeyer, M. L. (2018). The self-determined learning model of instruction: Teacher’s guide. Kansas University Center on Developmental Disabilities.

    Google Scholar 

  • Shogren, K. A., Burke, K. M., Antosh, A. A., Wehmeyer, M. L., LaPlante, T., Shaw, L. A., & Raley, S. K. (2019). Impact of the self-determined learning model of instruction on self-determination and goal attainment in adolescents with intellectual disability. Journal of Disability Policy Studies, 30(1), 22–34. https://doi.org/10.1177/1044207318792178

    Article  Google Scholar 

  • Shogren, K. A., Burke, K. M., Anderson, M. A., Antosh, A. A., LaPlante, T., & Hicks, T. A. (2020). Examining the relationship between teacher perceptions of implementation of the SDLMI and student self-determination outcomes. Career Development and Transition for Exceptional Individuals, 43(1), 53–63. https://doi.org/10.1177/2165143419887855

    Article  Google Scholar 

  • Shogren, K. A., Mosconi, M. W., Raley, S. K., Dean, E. E., Edwards, B., Wallisch, A., Boyd, B., & Kiblen, J. C. (2021). Approaches for advancing the personalization of assessment and intervention in young adults with autism by targeting self-determination and executive processes. Autism in Adulthood, 3(4), 289–299. https://doi.org/10.1089/aut.2021.0010

    Article  Google Scholar 

  • Shogren, K. A., & Raley, S. K. (2022). Self-determination and causal agency theory: From research to practice. Springer, in press.

  • Singh, N. N. (2016). Implementing evidence-based practices wisely. In N. N. Singh (Ed.), Handbook of evidence-based practices in intellectual and developemental disabilities (pp. 1–7). Springer.

    Chapter  Google Scholar 

  • Singh, N. N., & Hwang, Y.-S. (2021). Mindfulness in intellectual and developmental disabilities. In N. N. Singh & S. D. S. Joy (Eds.), Mindfulness-based interventions with children and adolescents: Research and practice (pp. 96–118). Routledge.

    Google Scholar 

  • Singh, N. N., & Singh Joy, S. D. (2021). Mindfulness-based interventions with children and adolescents: Research and practice (pp. 163–178). Routledge.

    Google Scholar 

  • Singh, N. N., Wahler, R. G., Adkins, A. D., & Myers, R. E. (2003). Soles of the Feet: A mindfulness-based self-control intervention for aggression by an individual with mild mental retardation and mental illness. Research in Developmental Disabilities, 24(3), 158–169. https://doi.org/10.1016/S0891-4222(03)00026-X

    Article  PubMed  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Winton, A. S. W., Fisher, B. C., Wahler, R. G., McAleavey, K., Singh, J., & Sabaawi, M. (2006). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorder, 14(3), 169–177.

    Article  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Winton, A. S. W., Singh, J., Curtis, W. J., Wahler, R. G., & McAleavey, K. M. (2007). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification, 31(6), 749–771.

    Article  PubMed  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Winton, A. S. W., Singh, A. D. A., Singh, A. N. A., & Singh, J. (2013). Mindfulness-based approaches. In J. L. Taylor, W. R. Lindsay, R. P. Hastings, & C. Hatton (Eds.), Psychological therapies for adults with intellectual disabilities (pp. 253–266). Wiley-Blackwell.

    Google Scholar 

  • Singh, N. N., Lancioni, G. E., Myers, R. M., Karazsia, B. T., McPherson, C. L., Jackman, M. M., Kim, E., & Thompson, T. (2018). Effects of SOBER Breathing Space on aggression in children with autism spectrum disorder and collateral effects on parental use of physical restraints. Advances in Neurodevelopmental Disorders, 2, 362–374.

    Article  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Karazsia, B. T., Myers, R. E., Hwang, Y.-S., & Anālayo, B. (2019a). Effects of Mindfulness-Based Positive Behavior Support (MBPBS) training are equally beneficial for mothers and their children with autism spectrum disorder or with intellectual disabilities. Frontiers in Psychology, 10, 385.

    Article  PubMed  PubMed Central  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Karazsia, B. T., Myers, R. E., Kim, E., Chan, J., Jackman, M. M., McPherson, C. L., & Janson, M. (2019b). Surfing the Urge: An informal mindfulness practice for the self-management of aggression by adolescents with autism spectrum disorder. Journal of Contextual Behavioral Science, 12, 170–177.

    Article  Google Scholar 

  • Singh, N. N., Lancioni, G. E., Chan, J., McPherson, C. L., & Jackman, M. M. (2020). Mindfulness-based positive behavior support. In I. Ivtzan (Ed.), Handbook of mindfulness-based programmes: Mindfulness interventions from education to health and therapy (pp. 42–52). Routledge.

    Google Scholar 

  • Singh, N. N., Lancioni, G. E., Medvedev, O. N., Hwang, Y.-S., & Myers, R. (2021). A component analysis of the Mindfulness-Based Positive Behavior Support (MBPBS) program for mindful parenting by mothers of children with autism spectrum disorder. Mindfulness, 12(2), 463–475.

    Article  Google Scholar 

  • Snel, E. (2014). Mindfulness matters: Mindfulness for children, ages: 5–8: Trainer’s handbook 1. Amsterdam, The Netherlands: Author.

    Google Scholar 

  • Spek, A. A., van Ham, N., & Nyklíček, I. (2013). Mindfulness-based therapy in adults with an autism disorder: A randomized controlled trial. Research in Developmental Disabilities, 34, 246–253.

    Article  PubMed  Google Scholar 

  • Tang, Y.-Y., Hölzel, B. K., & Posner, M. I. (2015). The neuroscience of mindfulness meditation. Nature Reviews Neuroscience, 16(4), 213–225.

    Article  PubMed  Google Scholar 

  • Ward, M. J., & Meyer, R. N. (1999). Self-determination for people with developmental disabilities and autism: Two self-advocates’ perspectives. Focus on Autism and Other Developmental Disabilities, 14(3), 133–139.

    Article  Google Scholar 

  • Watson-Singleton, N. N., Hill, L. K., & Case, A. D. (2019). Past discrimination, race-related vigilance, and depressive symptoms: The moderating role of mindfulness. Mindfulness, 10(9), 17868–21778. https://doi.org/10.1007/s12671-019-01143-5

    Article  Google Scholar 

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